Bioethical reflection on caring for a child facing death

Abstract

Ethical problems involved in death are exacerbated or more complex in the case of terminally ill children. Using the deliberative method, this article reflects on the value of human dignity based on the case of a girl at the end of life. We address issues related to therapeutic efforts, respect for the parents and children’s autonomy, nurse role as an advocate for the patient’s well-being and the self-care of health professionals. Death is a difficult process for the health team. Providing care at this stage implies respecting dignity, promoting autonomy and good dying. For this, new proposals are essential to contribute to the well-being of people at the end of their lives, particularly when health institutions do not meet their needs.